• Karen

Cycle 1-dose 1 of Enfortumab-vedotin chemo

Updated: May 1, 2021

A cactus in our front yard that I photographed a couple of days ago. To me, the flowers looks luscious enough to eat!

David got his first IV of the new chemo drug on 4/1. Although he doesn't feel completely normal today, he said he's surprised that he doesn't feel worse. We are thankful for that, especially since family will be visiting soon.

So far, David's only symptoms are lack of sleep and occasional hiccups. As with his previous chemo, hiccups can be a precursor to nausea, so the doctor called in a prescription to help with that. The lack of sleep is due to steroids that are put in the IV to ease the rocky road and reduce the chance of a bad reaction to the IV, but they cause insomnia. David got only about 4 hours of sleep last night. The steroids should wear off about 72 hours from when he received the IV, so by Sunday afternoon, they should be out of his system. That means he should sleep better Sunday night, but he might also feel worse from the chemo.

Unlike the schedule for his previous chemo, which he received once every three weeks, this chemo will be done on days 1, 8, and 15 of every three-week cycle. So he'll get chemo 3 times/month. Also, on the day before each treatment, he'll have blood tests done. So he'll be going to AZ Oncology a couple of time a week, except on his non-chemo weeks. Fortunately, it's only about 20 minutes away. His assigned research nurse, Marrae McWilliams, is keeping in contact with him frequently already because this is a clinical trial.

That's all the news for now. We'll keep you posted as things progress.

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